Orphanet

Orphanet is a European website providing information about orphan drugs and rare diseases.[1] It contains content both for physicians and for patients. Its administrative office is in Paris. The organisation also publishes the open-access online journal Orphanet Journal of Rare Diseases.

References

  1. ^ Aymé, Ségolène; Schmidtke, J. (December 2007). "Networking for rare diseases: a necessity for Europe". Bundesgesundheitsblatt Gesundheitsforschung Gesundheitsschutz 50 (12): 1477–83. doi:10.1007/s00103-007-0381-9. PMID 18026888. 

External links